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Why break a long silence on the handicapped experience, grief, suffering and death?

It is 31 years since my daughter, Jennifer, was born. It is 26 since she died.

There was no Facebook when she died, no Skype, no real facility to share without turning to the conventional media, to the journalists and publishers whose primary concern would always be ‘the story’.

When our daughter died and we were interviewed by a member of the local press, I was ready to thank a great many people, including medical staff, for what they had done. I was also ready to make certain criticisms, to tell some of the stories that were often not told, but my then wife wanted no part of that. Jenny was dead and a warm cocoon was necessary for my wife to survive that (though she didn’t, anyway) so we were to say nothing that might cast a chill. And while she was alive there were certain things we only ever shared with fellow-sufferers because you have to be very careful about pissing-off people that you depend upon.

My silence persisted. My marriage broke down in the aftermath of our own little girl’s life, I became a single parent with other things on my mind. The parents of handicapped children who had been our friends dropped away from us, faced with the cruel reality that our lives were made easier by the very death of our daughter. Life took me to a different part of the world, to different priorities, different needs, and I felt a sense that my knowledge and experience must surely be becoming, anyway, out of date?

Surely, I thought, things must have moved on? Hospitals and medicine must have got better, understanding must have developed, progress must have been made? But whilst some probably has, too much, it seems, has not.

The Charlie Gard story, and others in recent times, have reminded this old-stager that an awful lot has NOT changed. People are still struggling with the same issues we struggled with a quarter of a century and more ago.

Check out, for example, this item by Sam Carlisle

 

So here I am. Watching, listening, and ready to speak out, ready to share in the hope that my doing so may help others who are still in the throes of suffering.

And if you are inclined to, don’t thank me. I am writing about what is for me water under the bridge. None of this is ‘about’ me. It costs me nothing – my little girl and I are beyond any petty revenges, so I am free to say what I think needs saying.

Agree with my posts? Then please share them. There are some dark corners that could benefit from the spreading of more light.

Affected by anything in them? Please contact me. I am listening.

 

A Farewell to Harms.

In an earlier post some time ago I asked the question; is there any point in continuing?  Is writing (in my case literary historical erotica) worth the effort?

I have decided it is not. I have quit. Called it a day. Called it a night. Whatever phrase you prefer.

And it has proved to be a weight off my mind. The clamor (clamour in English English) of the marketeers, the people telling me how brilliant their next must-read novel is, the people telling me how easily they can splurge my name/my books across Twitter and the internet, is all gone. It has suddenly gone quiet.

I am not going to spend another six months, year, two years, three, investing effort into a manuscript, creating, writing, editing, re-editing a work which, on publication, will be worth less to the average reader than the price of a Starbucks or a piece of cheap, made-in-China tourist tat.

Nor will I ever wait anxiously in case the next review is written -as was one of my very first – by a loser who thought she had a score to settle, or by someone who struggles if there is more than one comma in a sentence.

Nor will I worry that any success I might achieve will be undermined by plagiarism or naked piracy.

To rest, now. Very soon I will change my tags on here, and considerably more, and all you are likely to find here will be photographs, predominantly of birds and squirrels, the odd observation on life, and small scale representations of the art work I plan to focus myself upon. I can draw, I can paint – kind of, and other things, and none of them require the effort or the time that is required by writing.

Yet how many folks, I wonder, will offer me – for a watercolour, an oil or a drawing – less than the price of a commercial coffee?

We’ll see.

Take care now.

 

 

 

Ultra-rich man warns his fellow American millionaires and billionaires: “The Pitchforks Are Coming”

Brilliant. Is anyone listening?

United Humanists

Join us: www.fb.com/unitedhumanists

Ultra-rich man warns his fellow American millionaires and billionaires: “The Pitchforks Are Coming”

You probably don’t know me, but like you I am one of those .01%ers, a proud and unapologetic capitalist. I have founded, co-founded and funded more than 30 companies across a range of industries—from itsy-bitsy ones like the night club I started in my 20s to giant ones like Amazon.com, for which I was the first nonfamily investor. Then I founded aQuantive, an Internet advertising company that was sold to Microsoft in 2007 for $6.4 billion. In cash. My friends and I own a bank. I tell you all this to demonstrate that in many ways I’m no different from you. Like you, I have a broad perspective on business and capitalism. And also like you, I have been rewarded obscenely for my success, with a life that the other 99.99 percent of Americans…

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Daughter

Daughter

 

Watching you grow

From little pink frog

To upright consciousness.

Watching you glow,

Your first smiles

Your first steps

Your first words

First sneezes, first hiccups,

Your first recognition of ‘daddy’.

Changing your diapers

Laughing

That the odorous is not odious,

Your little parts sweet

In their diminutiveness.

Giving you lifts, here and there,

Buying school clothes,

Lighting birthday candles

And blowing them out.

You all about me,

I all about you.

Your toys on the floor,

Your books on the shelves,

Your questions relentless.

Your voice a girl’s

Your choices a girl’s

Ballerina or tomboy.

Your vests and knickers small in the laundry,

Your panties, your bra,

Hanging with stockings over the bath.

Your looking in the mirror,

The coming of consciousness

That I am not the only one

Who thinks you beautiful.

And boys, then, and mistrust,

That any boy could be good enough,

That scares me no little.

Eventual acceptance,

No little worrying,

And then the big day,

If boys are your choice,

You at my side,

Music playing,

Your farewell to arms

That have held you since childhood,

Your welcome to arms

That may bring you to motherhood

And Pain.

Pictures.

Photographs and memories,

Framed in glass or framed in brain,

Everywhere.

Now almost nowhere,

For daughter, alas

You died ere they could come to pass.

Is there a point in continuing?

Rationally, now; not very emotionally, not in the depths of depression, I am asking myself if I should quit writing. It wouldn’t be easy, I know, but I do have the capacity to ‘walk away’ from things if they become too great a threat to my peace of mind. It’s a habit I learned, apparently, from the father who walked away from me more than half a century ago.

The odds of winning the UK national lottery are, I’m informed, about 1 in 14 million. Not good odds. But then, it seems that Amazon hosts some four million e-books and, to me, 1 in 4 million doesn’t actually sound all that good either.

I’ve had two books published, of course. “Aphrodite Overboard” and “Islands”. Both have had some excellent reviews, in fairness, but it’s a long time since I heard anything about “Aphrodite” from her publishers, so it’s pretty clear she’s not selling, and the publishers of “Islands” have just offered to return the rights of the book to me. Seems it sold a whole two copies in 2015.

Writing in support of a particular Weltanschauung, or world view, my books have not stuck to one theme and nor, indeed, do my works-in-putative-progress. To the heterosexual castaway Aphrodite, the Lady Susanna, elevated to the status of goddess, comes routine cunnilingus from male and female worshippers, and endless intimacy with her lovely female acolytes and the man she ultimately marries. To the hetero Tom Carton, of “Islands” comes the affection of a co-castaway, a young, gay sailor, in a gentle touch of m/m, and an equally deep and profound affection for a liberated, black, female slave. MF/FF in the first, MMLite and MF in the second.

If my WIPP “Sword” novel comes to fruition it will be a historical action adventure, set in the early 1700s, with intimate MF and FF interaction, whilst that which I shall for now call merely “Angel” is a mid-19th century Victorian story with a fundamentally FF base.

So they don’t really hang together. Even if one of the few who had read “Aphrodite Overboard” were motivated by it to look for something else of mine, they would not necessarily look in the direction of “Islands”.

Where, then, from here? I could take the highly recommended Indie road, of course, but it’s a fact that I haven’t a snowball-in-Hell’s chance of being able to pay an editor or anyone else to write with me. And if I go it alone the fundamental facts remain the same. I have two novels which, given my own impostor syndrome, may not actually be that much good and which may, anyway, if various kind folks who have referred to them as ‘literary’ are correct may be too literary for the bulk of an audience which – according to one of my publishers – is quite content to settle routinely for work she describes as ‘sub literate’.

It doesn’t matter that my Weltanschauung is Feminist, pro-LGBT, pro sex, pro intimacy, pro kindness and all the rest.

So, is there really any point?

 

Envied

Chained to his balls

In a prison called ‘Man’,

What do they see

Who call him ‘free’?

 

Wage slave, unmanned,

To a glossy treadmill tied,

Or mortgaged to a private cross

And crucified

Smiling.

 

Or rat

With the strange pink tail,

Imprisoned in a maze called ‘Man’

Who ought to wonder who are these

Who envy him the scraps of cheese

That are the mouldy recompense

For life that does violence

To dignity.

 

by Richard V Raiment.

A Culture Addicted to FREE—How FREE is Poisoning the Internet & Killing the Creatives

Exposure used to be the treatment/cure, but the world has evolved to be exposure-resistent. Exposure is like tossing regular penicillin at flesh-eating MRSA and expecting it to work.

Source: A Culture Addicted to FREE—How FREE is Poisoning the Internet & Killing the Creatives